The TANGO2 Research Foundation was founded in 2018 by a Connecticut couple who's son was diagnosed with TANGO2 in 2017.  This newly discovered and extremely rare disease affects just over 100 children world wide.  It is characterized by episodes ranging from head tilts, speech difficulty, intellectual disability, and seizures to potentially life-threatening metabolic crisis and cardiac arrhythmia.   The foundation  hopes to rapidly accelerate the understanding around TANGO2 and pave the way to future therapies and positive outcomes for our loved ones.