Team titin is a is a tax-exempt private foundation under the Internal Revenue Code Section 501(c)(3)

Team Titin provides services to the Greater Houston area by connecting doctors from Texas Children's to the families in the Houston area affected by Titinopathy. 

TCH's own Dr Timothy Lotze was put in touch with the leading researcher for the Titin mutation in Finland, Dr, Bjarne Udd, by Team Titin, so that me may be able to treat those with Titin in his Muscular Dystrophy Clinic.

One of our proudest accomplishments in 2025 was co-hosting the SciFam Conference, our largest and most ambitious event to date. Over four powerful days, we brought together families, clinicians, researchers, advocates, and industry partners to learn, share, and connect. Recorded sessions from our conference can be viewed on our YouTube channel in the “Team Titin SciFam 2025 Videos” playlist. Team Titin also helped fund multiple research grants to come one step closer to a cure!

Team Titin also helps families in Houston navigate raising a child with a rare neuromuscular disease by connecting them with the therapies and supplies they need.