LGMD2D Foundation

To support research and clinical trials to speed the development of treatments and a cure for LGMD2D/R3.


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Limb-Girdle Muscular Dystrophy (LGMD) is a group of rare muscular disorders that generally first present with weakness in the muscles around the hips and shoulders. There are over 30 genetic sub-types (forms) of LGMD. Although muscle weakness is found in every subtype, there are many differences between the diseases including: age of onset, inheritance patterns, and disease severity.  

Formed in September 2013, the LGMD2D Foundation is a registered 501(c)3 non-profit foundation built for families living with LGMD2D - both patients and caregivers - by families with the same diagnosis. We, too, saw there was a gap in providing information and resources to those living with this rare disorder. Our mission is to expedite the development of treatments or a cure for Limb-Girdle Muscular Dystrophy, type 2D / R3 (LGMD2D).

In addition to educating patients, researchers and physicians, the foundation: 

  • Maintains an international patient registry.
  • Funds research and monitors progress of trials.
  • Provides financial support to accelerate clinical trials.
  • Encourages scientific collaboration and partnerships.
There are currently no approved disease modifying treatments available for LGMD2D. 

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